I have been trying to line up a session with this family forever. Their oldest son, Kyle is a real dynamo and getting to meet him was a much-anticipated event, let me tell ya.
This young man has been in and out of the hospital with some serious medical concerns in his eleven years. He was born a mere 4lbs 6oz. and was diagnosed with Scoliosis (curvature of the spine) at the age of five. It was also discovered that he also had a form of Spina Bifida Occulta with Tethered Cord Syndrome.
He has undergone not one but two spinal cord surgeries and in the time since those operations, along with relearning to walk thanks to many hours of physio and occupational therapy, it was also discovered that he had yet another challenge to add to his list : Muscular Myopathy.
He deals with daily chronic pain, hypertension, a heart murmur and mitral regurgitation.
This young man has been in and out of the hospital with some serious medical concerns in his eleven years. He was born a mere 4lbs 6oz. and was diagnosed with Scoliosis (curvature of the spine) at the age of five. It was also discovered that he also had a form of Spina Bifida Occulta with Tethered Cord Syndrome.
He has undergone not one but two spinal cord surgeries and in the time since those operations, along with relearning to walk thanks to many hours of physio and occupational therapy, it was also discovered that he had yet another challenge to add to his list : Muscular Myopathy.
He deals with daily chronic pain, hypertension, a heart murmur and mitral regurgitation.
Yet despite these ongoing difficulties, Kyle is a charming, confident and outgoing young man with a penchant for grossing girls out and being wickedly cheeky (and oddly charming at the same time! fart jokes included!!) He is very affectionate and loving (as seen in images with his little brother, Mason) and has clearly made peace with his vulnerability long ago.
While his mom, Tabitha says that days where his pain is manageable enough to allow his silly personality to shine through are few and far between, when they do occur, they are enjoyed by everyone lucky enough to be in his presence. Kyle, I hope that the doctors who are working with you help you find a way to have more silly days and far, far fewer painful ones.Thanks so much for coming out to my farm guys. It was so wonderful to finally meet you all and to create such meaningful images for you to enjoy for a long time to come. ♥
If you know a family with a child living with a life-altering illness or disability, please put them in touch with Helping Hearts. This organization will connect them with me (or another photographer in their area) who will capture meaningful images like these to help them celebrate their little ones and hopefully find a little healing throughout the process of learning to live with some of the challenges imposed on a family during trying times such as these.
These are awesome pics of Kyle and Mason. The last one of Kyle is so great - that is the Kyle personality shining through - no question about it.
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